TSC Talks 3.0 Research, Episode 4-Rare disease Funding
30:14
TSC Talks 3.0 Research, Episode 4-Rare disease Funding
7 views1 month ago
YouTubeJill Woodworth Talks
Paediatric Rare Diseases in Children: Diagnosis & Care Insights | Dr. Raju Khubchandani
6:43
Paediatric Rare Diseases in Children: Diagnosis & Care Insigh…
167 views1 month ago
YouTubeNarayana Health
Rare Disease Week is here, and the zebras have arrived! 🦓✨
0:11
Rare Disease Week is here, and the zebras have arrived! 🦓✨
1.4K views2 months ago
YouTubeUnited Porphyrias Association
In recognition of #RareDiseaseWeek, we are sharing the story of Nate,
0:13
In recognition of #RareDiseaseWeek, we are sharin…
246.1K views1 month ago
YouTubeUnited Porphyrias Association
What does it mean to have a rare disease? It might mean…. 🦓 It takes longer to get properly diagnosed. 🦓 It’s frustrating to have to explain your disease to friends and loved ones. 🦓 You need to advocate for yourself a little louder. 🦓 You become an expert on your disease, sometimes even knowing more than your own doctors. 🦓 You have to travel to see a specialist. 🦓 Your insurance coverage is complicated. What does having a rare disease mean to you or your loved ones? Show your stripes - a
0:05
What does it mean to have a rare disease? It might mean…. 🦓 It take…
318 views1 month ago
FacebookInternational Waldenstrom's Macroglobulinemi…
Understanding the Importance of Rare Disease Research
2:54
Understanding the Importance of Rare Disease Research
7.5K views1 month ago
TikToktobytheneuroscientist
Retinoblastoma
9:52
Retinoblastoma
80K viewsJul 27, 2021
YouTubeLearn Medical Genetics
From rarity to recognition: A brighter future for rare disease pat…
1 month ago
cgtn.com
Profound NDE like Experience | Spiritual & End of Life Experience…
34.3K viewsDec 9, 2021
YouTubeNDE Accounts - Afterlife Stories
4:32
Living with Polycythemia Vera
43.3K viewsFeb 26, 2014
YouTubeNational Organization for Rare Disorders (NORD)
4:33
The Drug Development Process
53K viewsFeb 11, 2021
YouTubeNational Organization for Rare Disorders (NORD)
6:04
3 Diseases That Make You Stink
707.8K viewsApr 10, 2017
YouTubeSciShow
2:17
What is a Rare Disease?
3.6K viewsJan 16, 2015
YouTubeNational Organization for Rare Disorders (NORD)
5:02
What is Silver-Russell Syndrome (SRS)?
58K viewsApr 6, 2017
YouTubeHealthSketch
2:13
What is a rare disease?
13.7K viewsFeb 20, 2014
YouTubeNational Organization for Rare Disorders (NORD)
3:14
Living with Cornelia de Lange Syndrome
26.2K viewsOct 3, 2011
YouTubeNational Organization for Rare Disorders (NORD)
4:21
Pediatric Movement Disorders: Guidance for Parents & Physicians
10K viewsNov 8, 2019
YouTubeNational Organization for Rare Disorders (NORD)
15:52
Why Women Have More Autoimmune Issues Than Men
798.9K viewsJan 29, 2020
YouTubeSciShow
3:44
Rare Disease Challenges in Each Step of the Drug Development Pro…
2.2K viewsFeb 11, 2021
YouTubeNational Organization for Rare Disorders (NORD)
1:03
Día de las Enfermedades Raras Video Oficial 2018
18.3K viewsJan 29, 2018
YouTubeRare Disease Day
1:58
What Are Rare Diseases?
4.4K viewsJun 10, 2015
YouTubePfizer
4:35
Costello
2.4K viewsMar 2, 2022
YouTubeGenetic Alliance UK
4:21
Chiesi
432 viewsApr 13, 2022
YouTubeGenetic Alliance UK
3:12
Probability Comparison: Genetics
3.5M viewsMar 5, 2020
YouTubeiAmong Us
1:37:49
Engaging Healthcare Professionals
73 views6 months ago
YouTubeRare Disease Day
6:18
Rare Genetic Disorders
3K viewsFeb 28, 2022
YouTubeMount Sinai Health System
56:11
The Rare Sibling Experience
1.1K viewsMar 30, 2021
YouTubeNational Organization for Rare Disorders (NORD)
6:27
Severe Chronic Neutropenia (SCN) Explained
878 viewsApr 24, 2025
YouTubeNational Organization for Rare Disorders (NORD)
4:44
Understanding Enzyme Replacement Therapy
170 views3 months ago
YouTubeNational Organization for Rare Disorders (NORD)
2:02
Living with Langerhans Cell Histiocytosis
46.4K viewsSep 30, 2011
YouTubeNational Organization for Rare Disorders (NORD)
See more videos
Static thumbnail place holder